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Patient Education 5 Minute Read Aug 1 While most often associated with physical sexual relationships, sexuality is actually a considerably more complex aspect of our lives.
Sexuality is an issue for many people with ALS and their partners. Understanding how ALS affects sexuality is the first step to alleviating any problems with sex and intimacy that the disease may pose. The partners of people who have ALS may also experience feelings and psychological symptoms that affect his or her intimacy and sexual desire. Grief, fear, stress, and depression are common symptoms among the partners and many, who are often also the main caregiver, may experience exhaustion and resentment over care duties.
Combined, these feelings may affect sexual feelings and intimacy. Switching between the roles of lover and caregiver may also be difficult. Often, it is difficult for partners to talk about these issues with their loved one who has ALS.
The first step to addressing sexual difficulties is acknowledging them and understanding them. It is important to talk about these challenges with your partner.
The inability to discuss sex and intimacy with your partner is often the biggest problem. Avoiding these issues can easily lead to an avoidance of sex and other intimate contact. Confiding in one another often brings a couple closer and may help lessen or resolve your fears. Your healthcare team can answer questions and address your concerns while also providing resources and possible treatments.